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Tuesday, August 21, 2007

Day +187

Dale has now officially passed the 6 month mile stone. He is doing well. His hair has grown in very curly and has lost 20 pounds since his discharge from the hospital. He is now looking more like Danny instead of Derek. Although lately Dale has developed allergies very similar to Dereks. He never used to sneeze or have the sniffles. Derek on the other hand is very sensitive to allergens and sneezes all the time. So interestingly, Dale's body is reacting now to different allergens much like Derek. I thought he caught a cold but his latest blood work showed 11.7% eosinophils (upper limit - 6.4%) . Dale is now off Cellcept. He will be weaned off the cyclosporine next. His labs are stable. 2 weeks ago , Dale joined his brothers in Las Vegas for a basketball tournament. Dale was allowed to participate in the tournament. He also joined his team in the river pool at the MGM after the last game on Sunday. Dale was good about wearing his mask inside the casinos as we walked through to go to our room. Meals were a little tricky since Dale is still not allowed to eat fast foods or buffets. Breakfast was cereal in our room and lunch was peanut butter and jelly sandwiches eaten in the car as we traveled from one of his games to either Danny or Derek's games. We ate in non crowded restaurants for dinner and asked if they could microwave his food after it was prepared. One night, Dale and I ordered plate lunch from the "Cal" and brought it back to our room to microwave and eat while Derek joined his team at a seafood buffet . (Yes, we brought our own microwave) We came home Monday and in 4 days Derek, Dale and I were on a bus to Yosemite to meet up with Wade and Danny who had been hiking with the boy scouts (Troop 719) for the last 5 days. We spent 3 days in Yosemite. 4 boys(Derek, Dale, and friends Noah and Yoki) and I went fishing at Tenaya Lake as we waited for the hikers to come out. We caught 4 fish in about 3 hours. Each boy caught a fish which was very exciting. This was the first time fishing without a net for me so bringing it onto the rocks was quite a challenge. Derek was the only one willing to get his boots wet and catch the fish with his hands so the line wouln't break while bring the fish out of the water. Yosemite was beautiful and we all had a great time. The boy scouts and dads came out hungry and very dirty. Prior to leaving for Yosemite, we met a man who also had ALL like Dale and received a bone marrow transplant 4 years ago. The donor was Wade's cousin. Mr. Yamazawa is orginially from Japan and now resides in North Carolina. He owns a Japanese restaurant and is a sushi chef. He presented Dale with a thousand cranes, each crane folded after 3 hrs of chanting (Buddhist) first. So after 3,000 hours of chanting, 1000 cranes were folded, strung together and given to Dale. He said many of his friends around the world helped to make these cranes, again each person chanting 3 hrs before folding one crane. Each person also had a photo of Dale and some background information so they knew who and what they were chanting for. Dale noticed that some of the cranes were folded with christmas wrapping paper and other types fo paper. He explained that origami (japanese folding paper) is not available to everyone so they use whatever type of paper they had and cut it into 4 x 4 squares. Mr Yamazawa is a humble man filled with much gratitude. He now travels back and forth to Japan visiting other cancer patients trying to give them a glimmer of hope. It was a wonderful experience meeting him. Dale has now received over 5,000 cranes . We are grateful for the love and support he has received and continues to receive. I apologize for the long post. Grace and peace to you all......

1 comments:

millie said...

Hi Dale,
Loved the pictures of you at the park and with Mr. Yanazawa. I can't wait to see your cranes (in 9 days)! Remind me to give you the ones I took home to fold for you.

We just got back from Las Vegas yesterday after spending the previous week with Danny, the Hamada's and Umekubo's on Kauai. Everywhere we went, we thought about you and wished you were there... We'll definately have to plan for next summer! And, Danny has a new FAVE restaurant on Kauai (Kintaro's). We never took you there because it's always crowded, etc. The Hamada's went out with their friend Colin and Danny came with Uncle Eric and I (Danny said he considered us the closest to being his family so he came with us, of course I was very touched). He enjoyed it so much, we went back the next night with everyone!

Did you like the picture of the "Sand Man?" Danny was rolling around in the sand and I thought you'd appreciate seeing him on the beach...

The beaches were just as beautiful and not "crowded with ants." Of course, our Ono Burger was delicious as ever... And, shopping?? Wow, never seen so many great shoppers! Matt and Danny were in HEAVEN! Hope you liked what Danny brought back for you...

Let's be sure to bake some cookies when I'm there (yes, I'll bring some cookie sheets). Triple Chocolate Chip cookies (how does that sound)? Till then, take care... If you need anything from Hawaii or San Diego, let us know...

Lots of love and kisses and HUGS!
Auntie Millie