Sunday, February 25, 2007

DAy +10

I had the day off today. Wade stayed with Dale last night and most of today. The cyclosporine level went back up to 409. They don't seem to know why the level keeps going up and down. Hopefully, it will be back down again in the morning. The platelet count dropped to 31,000. The doctors in the morning felt he did not need a platelet transfusion but by 7pm this evening, Dale had a terrible nose bleed that would not stop. The nurse had to get some gelfoam to pack his nose and then they gave him a unit of platelets. The nurse reported that Wade did a good job helping Dale . I watched Dale on the web cam. He was scared and started to cry. By the time I got there, the bleeding had stopped and he was ok. Now that he has received this unit of platelets, his blood pressure is high again, 150/96. If it's not one thing, it's another. The nurse just came in to tell me that he is 1100cc postivie so they will be giving him a diuretic which will make him "pee" all night. I think the highlight of the day was eating the chili dog Grandma June made for him. Hopefully the rest of the night will be ok. Still no signs of engraftment yet but we keep hoping it will be soon.


millie said...

hi dale...

glad to hear you're eating so well! i still remember the day when we left ucla, you ate your in n' out burger and was looking for more!

so does your dad get an A+? i'm sure he does just as good as mom...

i'll be sending a box off to you in a couple of days. if you can think of anything else you'd like me to send, give me a call (on monday).

i'm having lunch with "little ruthie" tomorrow. she's flying in for a check-up with her doctor on oahu. ruthie and her family are praying for your speedy recovery!

keep strong! you're the bravest person i know! take care and SEE YOU SOON!

lots of love from hawaii,
auntie millie

Shannon said...

Hi, Dale! I've been reading your story on this site going all the way back to December 2006 to catch up and I've really been moved by you and your family. I know your dad from work as I am located in the TX office of ivpcare. I have 3 children Jared (18), Nathan (7), & Hannah (4) and when I think of them being in your situation I can empathize with what you & your family is going through. I realize YOU are carrying the biggest part of the load here and I'm SUPER impressed with your strength & courage. In fact, I've recently joined Team In Training with the Leukemia & Lymphoma Society and am in training to run a marathon in June. My goal is to raise money for research & patient assistance programs to help people just like you to go into remission for GOOD! :-) Of course, the other goal is that I actually complete the marathon (26.2 miles)and don't get eaten by a bear (I'm running in the Anchorage, Alaska marathon.) I guess the point here is that I'm not necessarily a runner. But I believe in the company I work for and in the TNT mission to eradicate Leukemia and Lymphoma. So this is a way I can help contribute. You helped me this past Saturday when I was thinking about the 6 miles I was supposed to run. We meet at 7 a.m. to start and I was feeling a little sluggish about getting up but thought of you. I had read that you hadn't been out of your hospital room in a while and I realized that I GET to run 6 miles out in the wide open outdoors. So YOU were my motivation. I thought that if you could do all the things you are doing each day then I could certainly get my booty out of bed and keep pressing on towards a goal that might someday help you or other kids like you. I have a hospital bracelet that I'm supposed to put my heroes names on to remind me why I'm doing what I'm doing. I was wondering, Dale, if I could put your name on my wristband? I have a website that I've just started to help me earn the money I need for the marathon and I would love to add information about you on it but wanted your permission before I do that. ( I have 2 local honored heros here in TX that I took pictures with last week at a breakfast where I heard them speak about their specific conditions and treatments and how TNT has made a difference in their lives. I was going to put some of their info here, too. So, tell me what you think? It would be my honor to be able to count you as my personal hero -- I think you're awesome already -- and even though we're several states away, we're as close as email. I can keep you up to date on my progress while I check in on yours. I'll even send you pictures of my family if you want and you can get to know me a little. (or a lot...I'm kind of a talker.) I hope this Monday is a great beginning to your week!

Shannon Ray (ivpcare Training & Development Specialist)

p.s. The first time I met your dad was in a meeting in TX...he was eating a sandwich and had mayonaise on his face but didn't know it. I was trying to motion to him across the table that he had something on his face without anyone else noticing...well, he eventually got the message but apparently so did most everyone else. Sigh! So much for being subtle! :-)

Ruthie said...

Hi Dale,

I don't know if you remember me or not, but I am your Auntie Millie's sister in law (Millie's brother Doug's wife). Anyway, just thought I would send you a note to let you know that I am thinking about you. Auntie Millie keeps us updated on your progress and are definately "MY HERO". I have problems with the simple things in life and you are conquering much much more. You give all of us inspiration in that positive attitude of yours, always holding your head up high with your nose to the wind. Wow....

Doug & I just got back from Las Vegas or should I say "Lost Wages", haha!! and we came back NOT big winners, but not big losers either. We arrived the Monday after the NBA All Star West vs. East game. I heard it was a zoo in Vegas. In fact when we arrived, the lines for checking in in Las Vegas airport was over a mile long. I heard that people missed their flights and their connections too.

Thank you for being an inspiration to me and showing me the "can do" attitude. I'll try to write again to you every now and then.

Keep that head up!!! By the way, I would be honored if you would call me Auntie Ruthie.

Love & kisses & a big hug too.
Auntie Ruthie

Captain Barbossa said...

Yo Yo Yo, Captain Jack! Are you taking care of my Black Pearl? I'm taking care of your crew and hope to enjoy an apple and some pirate's booty with you soon!

I'll be seeing ya matey!

From, Captain Barbossa and Crew